If you have no personal experience with it, you might automatically think of a cleft lip, which is usually visible before it's repaired since it involves the actual lips of a person's mouth. You might see a scar in the space between the nose and the lip on someone who's had a cleft lip repaired.
However, cleft palate is different. The palate is the roof of the mouth, which you can't see when casually interacting with someone.
Kids born with Pierre Robin Sequence (PRS), like Zadie, are often born with a cleft palate. It's usually discovered at birth or soon after. A cleft palate is difficult to diagnose in utero, which is why a diagnosis of PRS is often a surprise. In Zadie's case, I had weekly ultrasounds leading up to her birth, and the cleft palate was not detected. Cleft lip, which is more likely to be diagnosed in utero, is not usually seen in PRS babies.
I can't tell you how many times I've told someone about some of Zadie's issues and they say something like "wow, you can't even tell!" Hopefully, this info will help increase awareness and knowledge!
Facts about cleft lip and cleft palate:
https://www.cdc.gov/ncbddd/birthdefects/cleftlip.html
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