Zadie's story

Zadie was born on May 31, 2011 at 11 am.  She was diagnosed with Pierre Robin Sequence that night, after she had been admitted into the NICU.  She had a cleft palate, small chin (micrognathia), and a tongue that fell back too far (glossoptosis).  She had trouble eating and breathing because of these anomalies.  She received a feeding tube at 4 1/2 weeks of age, and then a trach at 5 weeks.  The days, weeks, and months since she was born have been filled with a lot of fun and love, but also anxiety and worry.  She's a strong little girl and will put all of this past her one day!