This is the story of my daughter, Zadie, who was born on May 31, 2011 and diagnosed with Pierre Robin Sequence. I hope the blog helps others going through what we've been through (and are still going through).
Tuesday, May 1, 2012
Morphine is good!
Today was a long day! Up before 5, anxiously waiting and waiting and waiting, and then seeing Zadie post op, swollen and bleeding. Not how you ever want to see your little baby girl, but she was a rockstar. The nurse in the recovery room said she sees kids who have had less done who are much more miserable than she was. Thanks to my PRS mommy friends, Angela and Kris, we had an idea of what to expect. I don't think you can ever be fully prepared to see blood practically pouring out of your baby's nose, mouth and trach! Uncle Geoffrey, Aunt RayAnne, Emma and Grace came for a visit and brought Zadie a balloon. How did they know she loves balloons??? Zadie was standing up and playing a bit in her crib tonight. She might have done a little too much, because she was pretty uncomfortable a little later, and they ended up giving her morphine. No need to be a hero, Zadie! Daddy's home with the doggies, and I'm camping out with Z. Oh, and it's St. Joseph the Worker Day, and we're at St. Joseph's Hospital, so maybe it's a good sign? On that note, good night!
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