This is the story of my daughter, Zadie, who was born on May 31, 2011 and diagnosed with Pierre Robin Sequence. I hope the blog helps others going through what we've been through (and are still going through).
Sunday, September 15, 2013
"I do!"
Little Miss Independent wants to do EVERYTHING. Every step of the pottying process (lifting the lid, flushing, turning off the light, etc.), pouring her own drinks, opening the door for the dogs. Her latest thing she wants to do is her own suctioning. She doesn't need suctioning too often anymore, but she usually needs it first thing in the morning. I do let her help a little bit. She also wants to be the one to pull her gauze out from under her trach every morning and night. She gets very upset if we don't let her do things, and says, "I do!" Just a typical headstrong 2 year old with some atypical things she's learning to do!
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