|Zadie and Beatrix!|
A few days after Beatrix was born, Zadie went to Philly with her daddy to have her follow up sleep study. Since she did badly on the one in July, her ENT, Dr. Javia, suggested we remove her adenoids. He was hoping that they were the cause of her apnea. We were hoping that the follow up sleep study would be improved enough that decannulation would be a real possibility. Unfortunately, less than an hour into the study, the technician removed Zadie's cap. From then on, she was sleeping as she does at home, with the trach open, and therefore not really getting any benefit out of the study. It was pretty discouraging, since there was no point in being there any longer, but they stuck out the night (Zadie was sleeping already anyway). We held out some hope for a positive result, but when I talked to the nurse a couple of days later, she told me that the results were much worse than the results from July! The apnea hypopnea index (AHI), which is the number of recorded apneas or hypopneas per hour, was 12 in July and 75 in November! The link I provided has a different measure of what is severe from what CHOP considers severe, but on either scale, 75 is severe. And that's why they took the cap off.
|No like sleep studies!|
Otherwise, Zadie is doing really well, health wise (knocking on wood).
|Letter from insurance company|