Friday, August 16, 2013

Follow up on Sleep Study

We went to Philly on Monday to see Zadie's ENT to discuss the results of the sleep study and to talk about the plan going forward.  The nurse on the phone had told me that Zadie had moderate obstructive sleep apnea, but Dr. Javia told us it was actually severe.  He thinks the culprit might be her adenoids, so she is scheduled for an adenoidectomy on September 30.  Her tonsils have always looked fairly small, but there is a possibility that they will be taken out at the same time.  While she's under for that procedure (or procedures) she will also get a bronchoscopy to really look at the airway.  About 4-6 weeks after her surgery, she will get another sleep study.  Even though we'll already be in November by that point, Dr. Javia didn't totally shoot down the possibility of decannulation (losing the trach) this year, although he usually doesn't do it in the cold and flu season.  I'm not getting my hopes up for decannulation this year, though.  I think chances are pretty good it will have to wait until the spring.  It would have been nice for the trach to be out before the new baby comes, but it is what it is.

Zadie showing off her boo boo from getting blood drawn.

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