|Zadie with one of her favorite NICU nurses, Patty|
|Zadie's neonatologist, Dr. Ruben, sending her off|
|Proud big brother with his baby sister home for the first time!|
It was torrentially raining that day, and when we got home, the director of nursing of the home care agency and four nurses were waiting to be oriented on Zadie's case. From that day on, we've had nurses in the house 16 hours a day almost every day.
So much has changed in the last year! Zadie has grown, of course, and is happy and healthy and on the go. She's been back in the hospital a few times. She no longer has a cleft palate. She's eating and drinking by mouth, although still uses her tube overnight (mostly because we haven't gotten the orders changed). We are old pros at changing trach ties, changing the trach itself, getting it back in if it gets pulled out, changing her Mic-key button (feeding tube), putting that back in if it gets pulled out.
Maybe, just maybe, in a year from now, Zadie will have put a lot of this behind her!